Celiac Canada Privacy Policy

Celiac Canada (“CCA”, “we”, or “us”) values and respects your privacy. We have
prepared this privacy policy to explain the manner in which we collect, use and disclose
personal information when you visit our website located at (the
“Website”), use our mobile application Gluten Free 24/7 (“App”) or otherwise interact
with us.

[This Privacy Policy does not describe the personal information practices of our local
chapters. Please contact a local chapter directly to learn about its personal
information practices.]


• Collection And Use Of Personal Information
• Sharing Of Personal Information
• Information About Our Website
• Interest-Based Advertising
• Safeguards And Retention
• Your Choices
• Access To Information
• Updates To The Privacy Policy
• Contact Us


We may collect and use personal information when you:
• Use our celiac disease support services
• Use our App or visit the Website
• Sign-up to receive emails from us such as newsletters, offers and promotions
• Volunteer for our organization
• Donate to our organization
• Apply for a job at CCA
• Participate in our research surveys or clinical trials
• Attend our events
• Contact us with a comment, question or complaint.

Celiac Disease Support Services: If you contact one of our peer support leaders, on-staff
dietitians, request specific downloadable resources or obtain other support services
through CCA, we may collect certain personal information about you including: your first
name, last name, topic/issue, email address and/or phone. For our Newly Diagnosed
Pathway Program, we additionally collect date of birth, if they are a caregiver and/or
diagnosis date. The date of birth is to confirm the individual is 19 years of age or older
and date of diagnosis to determine understanding of their time with the disease.
Provision of the App: To access our App, you will be required to create an account and
provide personal information such as your name, email address and a password that you
create. We use this information to create and administer your account. We strongly
recommend that you do not disclose your password to anyone. We will never ask you for
your password in any unsolicited communication (such as letters, phone calls or email
messages). If you become aware of any unauthorized access to or use of your account,
you are required to notify us immediately.

As with many applications, certain limited data is required for the App to function on your
device. This data may include the type of device hardware and operating system, unique
device identifier, IP address, language settings, and the date and time the App accesses
our servers. We use this information to help us understand the activity on the App, to
monitor and improve the App, and to tailor your in-App experience. In addition, we may
use third-party service providers to collect analytical information about your use of the
App, such as the App features used and time spent on the App, to help us tailor your
in-app experience, improve our products and the quality of our App, and to manage
and analyze data in order to better understand our users.


If you sign up to receive email communications, we will collect your
first and last name, province, and email address in order to send you newsletters, offers,
promotional material, and other information that may be tailored to your interests and
preferences. You can unsubscribe at any time by clicking the “unsubscribe” link included
at the bottom of each email. Alternatively, you can opt out of receiving such
communications by contacting us at the contact information provided in the “Contact Us”
section below. Please note that you may continue to receive transactional or accountrelated communications from us.
We may use services provided by third-party platforms and companies (such as social
media, other websites) to serve targeted advertisements on such platforms to you or
others, and we may provide a hashed version of your email address or other information
to the platform provider for such purposes. To opt out of the use of your information for
such purposes, please send a request using any of the methods set forth in the “Contact
Us” section below.


If you would like to volunteer with us, we may collect your full name, email
address, phone number, location details (city and province), time commitment and
availability, areas of interests and skills, educational and employment background,
relevant experiences, languages spoken, your connection to celiac disease, and any
additional information you may wish to provide) in order to determine how you can
participate in CCA’s programs and initiatives.

Donations and Fundraising:

If you choose to donate to CCA, we may collect information
such as your full name, company name, email address, mailing address, phone number,
billing address, payment card information or other banking information, and tribute
details (if your donation is dedicated to another person). For specific donations, we may
require additional information to facilitate the donation and we will request this
information directly from you. Donors can choose not to be receive calls, text messages,
emails or direct mail by contacting or calling 905-507-6208 ext. 225.
Employment: In connection with a job application or related inquiry, you may provide us
with certain personal information about yourself (such as that contained in a resume,
cover letter, or similar employment-related materials). We use this information for the
purpose of processing and responding to your application for current and future career

Research Surveys and Clinical Trials:

We may collect certain personal information about
you if you choose to participate in a research survey or clinical trial of ours. The
information we collect will depend on the particular survey or trial. We will provide you
with specific details regarding our personal information practices for any survey or
clinical trial prior to collecting any information from you.


If you attend one of our events or webinars, we may collect your first and last
name, email address, city, province, postal code, country, phone number, and any other
information you may provide us in connection with the event or webinar. For Gluten-Free
101, we collect information regarding your relationship or years of experience with celiac
disease or gluten disorders to customize appropriate content for the participants. We
collect this information so that we can communicate with you about the event and
contact you about future events. We will obtain your explicit consent to opt-in for sharing
your information with our event sponsors or future CCA events, newsletters and
fundraising solicitation.

Contact Us:

When you contact us with a comment, question or complaint through email,
telephone, or the contact us form on our Website, you may be asked for information that
identifies you, such as your name, email address and/or a telephone number, along
with additional information we need to help us promptly answer your question or
respond to your comment. We may retain this information to assist you in the future and
to improve our customer service and products.


We do not sell or disclose your personal information to third parties without your consent,
except as set forth below or as required or permitted by law.

Service Providers:

Your personal information will be transferred (or otherwise made
available) to certain third parties that provide services on our behalf. We use service
providers to provide services such as hosting the Website, processing payments,
soliciting donations and providing advertising and marketing services. Our service
providers are only provided with the information they need to perform their designated
functions and are not authorized to use or disclose personal information for their own
marketing or other purposes. Our service providers are located in Canada (including
outside the province of Quebec for Quebec residents).

Legal and Compliance:

We and our Canadian services providers may provide your
personal information in response to a search warrant to other legally valid inquiry or
order, or to another organization for the purposes of investigating a breach of an
agreement or contravention of law or detecting, suppressing or preventing fraud, or as
otherwise may be required or permitted by applicable Canadian, US or other law or legal
process, which may include lawful access by US or foreign courts, law enforcement or
other government authorities. Your personal information may also be disclosed where
necessary for the establishment, exercise or defence of legal claims and to investigate or
prevent actual or suspected loss or harm to persons or property.


We may share certain information in an aggregated, nonidentifiable form for the purposes of fundraising and/or outreach.


Visiting our Website:

In general, you can visit our Website without telling us who you
are or submitting any personal information. However, we collect the IP (Internet protocol)
addresses of all visitors to our Website and other related information such as page
requests, browser type, operating system and average time spent on our Website. We
use this information to help us understand our Website activity and to monitor and
improve our Website.


Our Website uses a technology called “cookies”. A cookie is a tiny element of
data that our Website sends to a user’s browser, which may then be stored on the user’s
hard drive so that we can recognize the user’s computer or device when they return. You
may set your browser to notify you when you receive a cookie or to not accept certain
cookies. However, if you decide not to accept cookies from our Website, you may not be
able to take advantage of all of the Website features. Our cookies banner allows you to
set your preferences.


We use a third-party such as Google Analytics to help us gather and analyze
information about the areas visited on the Website (such as the pages most read, time
spent, search terms and other engagement data) in order to evaluate and improve the
user experience and the Website. These third parties may use cookies and other tracking
technologies. For more information about Google Analytics or to prevent the storage and
processing of this data (including your IP address) by Google, you can download and
install the browser plug-in available at the following link:

You can also obtain additional information on Google Analytics’ data privacy and security at the following links:
• and

Third-Party Links:

Our Website may contain links to other websites that CCA does not
own or operate. We provide links to third-party websites as a convenience to the user.
These links are not intended as an endorsement of or referral to the linked websites. The
linked websites have separate and independent privacy policies, notices and terms of
use. We do not have any control over such websites, and therefore we have no
responsibility or liability for the manner in which the organizations that operate such
linked websites may collect, use or disclose, secure and otherwise treat personal
information. We encourage you to read the privacy policy of every website you visit.


We work with third parties such as ad networks and other advertising companies that use
their own tracking technologies (including cookies and pixel tags) on our Website in
order to provide you with tailored advertisements across the Internet. These companies
may collect information about your activity on our Website and third-party websites (such
as web pages you visit and your interaction with our advertising and other
communications) and use this information to make predictions about your preferences,
develop personalized content and deliver ads that are more relevant to you on thirdparty websites. This information may also be used to evaluate the effectiveness of our
online advertising campaigns.

Opting-out of Interest-Based Advertising:

For more information about interest-based
advertising and to understand your options, including how you can opt out of receiving
behavioural ads from third-party advertising companies participating in the Digital
Advertising Alliance of Canada, please visit the Digital Advertising Alliance of Canada
website at

Please note that even if you opt out of interest-based advertising by a third-party, these
tracking technologies may still collect data for other purposes including analytics and you
will still see ads from us, but the ads will not be targeted based on behavioural
information about you and may therefore be less relevant to you and your interests.
To successfully opt out, you must have cookies enabled in your web browser (see your
browser’s instructions for information on cookies and how to enable them). Your opt-out
only applies to the web browser you use so you must opt out of each web browser on
each computer you use. Once you opt out, if you delete your browser’s saved cookies,
you will need to opt out again.


We have implemented reasonable administrative, technical and physical measures in an
effort to safeguard the personal information in our custody and control against theft, loss
and unauthorized access, use, modification and disclosure. We restrict access to
personal information on a need-to-know basis to employees and authorized service
providers who require access to fulfil their job requirements.
We have record retention processes designed to retain personal information for no
longer than necessary for the purposes set out herein or as otherwise required to meet
legal or business requirements.


As indicated above, if you have signed-up to receive our email communications, you can
unsubscribe any time by clicking the “unsubscribe” link included at the bottom of the
email. Alternatively, you can opt out of receiving our marketing communications by
contacting us at the contact information under “Contact Us” below. To opt out of interestbased advertising, see the “Interest-Based Advertising” section above.


Subject to applicable law, you have the right to access, update and correct inaccuracies
in your personal information in our custody or control. You may request access, updating
and corrections of inaccuracies in your personal information in our custody or control or
withdraw your consent to our collection, use and disclosure of your personal information
by emailing or writing to us at the contact information set out below. We may request
certain personal information for the purpose of verifying the identity of the individual
seeking access to his or her personal information records.


We may update this privacy policy periodically to reflect changes to our privacy practices.
We encourage you to periodically review this page to ensure you are familiar with those
changes. We will indicate at the top of this privacy policy when it was most recently


If you have any questions or comments about this privacy policy or the manner in which
we or our service providers (including our service providers outside Canada) treat your
personal information,
Melissa Secord, Executive Director
Email: Phone: 905-507-6208 ext. 226

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